ICEL2HFX PowerPoints

DETAILED PROGRAM

2ND INTERNATIONAL CONFERENCE ON END OF LIFE LAW, ETHICS, POLICY, AND PRACTICE

Wednesday, September 13, 2017 PAUL O’REGAN HALL, HALIFAX CENTRAL LIBRARY 5440 Spring Garden Road, Halifax, NS
7:00 pm Opening Plenary – The Story of Law Reform in Canada

Chair, Constance MacIntosh

Joseph Arvay, James Cowan, and Mona Gupta

Thursday, September 14, 2017 WORLD TRADE AND CONVENTION CENTRE
7:30 am Registration Begins (Lobby, Level 2)
8:15 am Welcome and Opening Remarks (Room 200C)
8:30 – 10:00 am

Room 200C

Plenary 2 – Empirical Studies: What Do We Know About End of Life Decisions Making Around the World? Chair, Agnes van der Heide

Luc Deliens, James Downar, Linda Ganzini, Bregje Onwuteaka-Philipsen, and Lindy Willmott

10:00 – 10:20 am Break (Refreshments) (Atrium, Level 3)
10:20 – 11:50 am Concurrent Session 1 (Level 3)
Room 301 Medical Assistance in Dying (MAiD) – Early Experiences and Practical Considerations in Nova Scotia and PEI (Panel)

Gordon Gubitz, Liana Brittain, Tim Holland, Matthew Kutcher, Robyn MacQuarrie, and Lianne Yoshida

Room 302 End-of-Life Issues in Canadian Prisons (Panel)

Adelina Iftene, Crystal Dieleman, and David Hooey

Room 303

 

 

Dutch GPs’ Views on Good Dying and Euthanasia

Katja ten Cate

Medical Aid in Dying in New York State: Physician Attitudes and Impact of Framing Bias

Brendan Parent

Physicians’ Perceptions of Aid in Dying in Vermont

Ari Kirshenbaum

Room 304

 

The Ethics of POLST

Lloyd Steffen

The Perils of POLST

Jean Abbott

ACP Without Paper: Adventures in Cyberspace

Peter Saul

Room 305

 

 

 

End of Life Regulation and Recent Evolutions in France

Veronique Fournier

To Live and Let Die. Withholding and Withdrawing Life Sustaining Treatment in Argentina: From Therapeutic to Judicial Obstinacy

Maria Ciruzzi

Adolescent Capacity to Refuse Life Prolonging Medical Intervention and Transformative Experience

Isra Black

Room 306 Challenges in End of Life Care and Medical Assistance in Dying:Towards a Relational Ethics Approach

Patricia Rodney

The Shift Away from ‘Suicide’ Talk: Incorporating Voices of Experience

Phoebe Friesen

Elderly Who are Ready to Give Up on Life and the Right to Autonomy

Michelle Habets

Room 307 “Rock, Paper, Scissors” – Ideologies of End of Life Care for Older People in Hospital

Laura Green

The Cultural Construction of End of Life Issues in Biomedicine: Anthropological Perspectives

Betty Wolder Levin

Caregiver Perspectives of Palliative and End of Life Care for Individuals at End-Stage Dementia in Newfoundland and Labrador: A Qualitative Phenomenological Perspective

Barbara Mason

11:50 – 12:50 pm Lunch (Room 100, Level 1)
12:50 – 1:50 pm

Room 200C

Plenary 3 – Palliative Care and its Relationship with Medical Aid in Dying Chair, Bregje Onwuteaka-Philipsen

Kenneth Chambaere, James Downar, and Eric Wasylenko

1:50 – 2:10 pm Break (Refreshments) (Atrium, Level 3)
2:10 – 3:40 pm Concurrent Session 2 (Level 3)
Room 301 Updating the Evidence about Physician-Assisted Dying and the Impact on Vulnerable Groups (Panel)

Margaret Pabst Battin, Bregje Onwuteaka-Philipsen, and Agnes van der Heide

Twenty Years of Experience with Physician-Assisted Death in Oregon

Linda Ganzini

Room 302 Against Advance Directives for MAID

Hilary Young

Advance Directives Requesting Euthanasia in the Netherlands

Liselotte Postma

Room 303 A Comparative Analysis of Voluntariness in the Netherlands and Oregon Physician-Assisted Dying Laws

Michaela Okninski

Voluntary Assisted Dying: The Proposed Framework for Victoria, Australia

Deborah Lawson

Should Assisted Dying Require the Consent of a High Court Judge?

Penney Lewis

Room 304 Not “Worth” It? Doctors’ Perceptions of the Role of Resources in Futility Determinations

Eliana Close

Australian Doctors’ Legal Compliance in Relation to Decisions About Withholding or Withdrawing Life-Sustaining Medical Treatment

Ben White

Withdrawing Life-Prolonging Treatment from Patients in Vegetative or Minimally Conscious States in England and Wales

Celia Kitzinger

Room 305 Conceivability of Performing Euthanasia in Cases of Psychiatric Disease, Dementia or Being Tired of Living

Kirsten Evenblij

What Characterises Complex Euthanasia Consultations? Experiences of SCEN-Physicians

Roeline Pasman

Euthanasia for People with Psychiatric Disorders or Dementia in Belgium: Analysis of Officially Reported Cases

Sigrid Dierickx

Room 306 Palliative Care Including Euthanasia. Responses to Fundamental Criticisms of the Flemish-Belgian Model of Integral End-of-Life Care

Jan Bernheim

Fine Lines and Dr. Syme: Intention, Palliation and Death Causation in Regulation and Law

Malcolm Parker

Mapping Out the Implementation of Bill C-14 on Health Care Providers in British Columbia

Rafael Wainer

Room 307 Ethical Issues: MAID and its Provision in Rural and Remote Settings

Fiona McDonald and Christy Simpson

Law Reform and Improving the Last Stages of Life: Preliminary Research Findings from Ontario Consultations

Ryan Fritsch

3:40 – 4:00 pm Break (No Refreshments)
4:00 – 5:00 pm

4A – 200C-1

4B – 200C-2

Plenary 4A – Stopping/Not Starting Potentially Life-Sustaining

Treatment: The Issue of Unilateral Decision Making Chair, Luc Deliens

Jennifer Gibson and Hilary Young

Plenary 4B – Palliative Sedation Chair, Kenneth Chambaere

Jocelyn Downie, Agnes van der Heide, and Joshua Wales

6:30 pm for 7:00 pm

 

Reception (Atrium, Level 3)

Banquet (Summit Suite, Level 8)

Friday, September 15, 2017 WORLD TRADE AND CONVENTION CENTRE
8:15 am Welcome (Room 200C)
8:30 – 10:00 am

Room 200C

Plenary 5 – Legal Status of Assisted Dying Chair, Lindy Willmott

Joan Gilmour, Emily Jackson, and Ben White

10:00 – 10:20 am Break (Refreshments) (Atrium, Level 3)
10:20 – 11:50 am Concurrent Session 3 (Level 3)
Room 301 Medically Assisted Deaths on Vancouver Island – The First Year

Stefanie Green

Experiences of Patients and their Support People with Medical Assistance in Dying in Canada

Ellen Wiebe

Reasons for Requesting Medical Assistance in Dying (MAiD) in Canada

Ellen Wiebe

Room 302 Carter vs. Rasouli – Why was One Supreme Court Decision Right and the Other Wrong?

James Downar

Conversations About CPR – Professional Judgement or Autonomy?

James East

Medical Futility Dispute Resolution Options in the United States: Law and Ethics Fundamentals

Thaddeus Pope

Room 303 A Grey Area Between Palliative Sedation and Euthanasia

Veerle van de Wetering

An International Perspective on Patient Preferences in the Decision-Making of Continuous Sedation Until Death

Agnes van der Heide

The Evolving Role of Palliative Sedation in the Era of MAiD

Blair Henry

Room 304 Reframing Hope: A Rehabilitation Perspective on End of Life Care (Panel)

Preya Tarsney, Debjani Mukherjee, and Gayle Spill

Room 305 Experiences of Psychiatrists with (Granting) Requests for Euthanasia in Patients with Psychiatric Diseases

Kirsten Evenblij

Consensus View on Assisted Dying for Dementia: A Delphi Study on Key Issues and Concerns

Aida Dehkhoda

Expert Views on Developments in the Practice of Physician-Assisted Dying in the Netherlands

Marianne Snijdewind

Room 306 Organ Donation in the Context of MAiD: Ethics, Law and Policy

Jennifer Chandler

Euthanasia by Organ Donation

Michael Shapiro

Organ Donation and Assisted Death: Are There Special Ethics Considerations?

Eric Wasylenko

Room 307 Advance Decisions to Refuse Treatment: Explaining Low Uptake in England and Wales

Sue Wilkinson

The Notion of Advance Directives: Headway or Hazard?

Jean Abbott

Should Medical Input be Required in Completion of Advance Care Directives?

Deborah Lawson

11:50 – 12:50 pm Lunch (Room 200C)
12:50 – 2:20 pm Concurrent Session 4 (Level 3)
Room 301 A Year in Review: The Who, When, Why and How of Requests for Medical Aid in Dying in Quebec

Lori Seller and Veronique Fraser

Regulating MAID: The Medical Regulatory Perspective

Andréa Foti

Room 302 Considering MAiD in Severe, Refractory Mental Illness

Justine Dembo

Are Concerns About Irremediableness, Vulnerability, or Competence Sufficient to Justify Excluding Psychiatric Patients from MAID?

William Rooney

Psychiatrists’ Views on Physician-Assisted Suicide and Psychiatric Patients: A Qualitative Study

Rosalie Pronk

Room 303 The Under-Examined End-of-Life Option: Hastening Death by Voluntary Stopping Eating and Drinking (VSED)

Thaddeus Pope

Medical Assistance in Dying and Incarcerated Persons – Special Considerations?

Eric Wasylenko

Medical Aid in Dying for Mature Minors: Re-interpreting the Problem of Decisional Capacity

Kathryn Morrison

Room 304 Patients with Parkinson’s Disease, Caregivers’, and Healthcare Providers’ Perspectives of Advance Care Planning for End-of-Life Care

Kim Jameson

‘You’re Going to Die. How Would You Like to?’ Timing Discussions of End-of-Life Treatment Preferences

Jaklin Eliott

Advance Care Planning in Australia: Aspirational or Practical?

Bernadette Richards

Room 305 The Influence of Doctors in the Australian Assisted Dying Debate

Jodhi Rutherford

The Politics Behind the Law on Assisted Dying

Adam McCann

Attitudes of Doctors on the Role of Law in End-of-Life Medical Practice: Empirical Findings from Australia

Lindy Willmott

Room 306 A New American Threat to Open Discussion of End-of-Life Issues

Robert Rivas

Demedicalised Assistance in Suicide

Martijn Hagens

The Human Rights Implications of the Blanket Ban on Assisted Suicide in England and Wales

Stevie Martin

Room 307 Trying and Dying: Are Some Wishes Better?

Oliver Kim

End of Life Care at the Beginning of Life

Kimberly Mutcherson

The Research Protocol of a Post-Mortem Survey on End-of-Life Decisions

Laure Dombrecht

2:20 – 2:40 pm Break (Refreshments) (Atrium, Level 3)
2:40-4:40 pm

Room 200C

Plenary 6 – Pressure Points for Eligibility for Medical Assistance in Dying (Mature Minors, Mental illness as Sole Underlying Condition, Advance Requests) Chair, Ben White

Christine Chambers, Jennifer Chandler, Justine Dembo, Jennifer Gibson, Joan Gilmour, and Kenneth Rockwood

4:40 pm Closing Remarks (Room 200C)

 

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